S is for Susan

s is for susan cover jpgI received an incredible gift this week from my niece Dale and her sixth grade class. Last year I visited her public school in Chicago as a visiting poet. She is in a gifted classroom and these kids have been together since kindergarten. I have met their parents and heard about many of them for years in her stories. It is also my favorite age for poetry, 4th-6th grade, when I really started exploring what poems were and how they worked– and what they could hold and express.

Dale said that it was the first assignment that everyone turned in on time all year. They were asked on a Monday to bring a poem for the book on Tuesday, and all 21 students showed up with a poem. And not just a poem, but in most cases elaborately decorated pages with drawings.

The overall theme is memory– a favorite memory or strong memory. The poems are in different styles and form, some tightly rhymed and humorous, most more organic. I always am interested in forms they come up with themselves, like a few that use a sort of question and response, before and after structure. Some are funny, and others are full of feeling. It is always moving and exciting to me to see people, children or adults, working with words this way. It is what my new book, H is for Harry, is about– the way we make worlds, identity, our lives, out of words.

s is for susan 2

 

Here’s another in that style, which will resonate with everyone who was a perfectionist tween or teen! The Performance

And here’s a lovely emotionally honest poem by Dale’s friend Claire: Another

And finally, a poem about aliens with a great illustration, by Adamina, who has been watching The X FilesThe Truth is Out There

But of course, I didn’t make it through Dale’s poem without crying. It is so beautiful and such a testament to our relationship.

It is called “My Memories of Your Memories,” and goes through a number of stories I’ve told her about my own childhood (and recent life) in an attempt to fill her endless desire to be told stories since she was about three years old. Each story is condensed into one or two lines, and the rhymes are there but subtle– and still, the rhymes guide some of the poem’s decisions, and it is the rhyme that sets up the last line, which is a gem.

Dale's Poem

And the illustration! It includes a drawing of the two of us on the couch, me in one of my hats and her with all her hair, based on a selfie we took during my recent visit to Chicago. And out of my mouth comes a series of bubbles with illustrations of the stories in the poem.

And of course, it isn’t lost on me how many of those classic childhood stories involve my sister Kathy. Those are my precious memories, the most fun times– going down a slippery slide during a rainstorm into wood chips, getting attacked in our snowsuits when we were little by two even younger boys at a park, losing my retainer in the ocean and waves lifting us up just as one of us would dive for it… Last night on the phone I shared the lines about those stories and we laughed and shared some more.

The stories sometimes have a dark edge: Ivan the indoor cat who we saw quite often outside before he disappeared, along with baby ducklings and muskrats and other helpless creatures on the farm. The Ebel boys who call our swimming hole “Leech Pond.” I gasped at the story about the truck and guns, which was not as dangerous or scary as it sounds, because her parents aren’t supposed to know I told her that one! It wouldn’t be the first time a poem and what is in there got me in trouble.

Dale and meCheers from here. Write poems. Tell each other stories. And love each other as fully and joyfully as Dale and I love each other. That is what I wish for everyone.

 

 

Posted in cancer, poetry, writing | Tagged , , , , | 1 Comment

The Weight

scaleWhen chemotherapy knocked out my desire and the taste for alcohol, many carbohydrates, and sugar, particularly chocolate, several women on both sides of my family said: “Oh, you’re going to lose weight!” This is, for middle aged women, an unqualified good result, no matter how you get it. They weren’t being flippant. It is a silver lining, let’s say.

The goal of the medical team is for the patient not to lose weight, but I was at the time about 25 lbs overweight. In ten weeks I have lost 15 lbs. I am still a healthy weight. And all my “numbers” are good, and I am eating a very healthy diet: mostly lean meat, nuts, fruits and vegetables. Weight is not something I’m worried about at all.

But one of the not-silver-lining effects of chemotherapy is that you lose muscle. Despite all this protein, I have seen my body sort of collapse, particularly my breasts and stomach. Even before fatigue made me less active, the muscle mass was going, my body was changing in a way I didn’t like.

There is a lot of discussion with and among breast cancer patients on the loss, or maiming, of their breasts, and what this means in terms of identity for women. A large part of the feminist project has been the question of prosthetics– is it vanity? Is it empowerment? Is it “right” or “wrong” to be defined by one’s breasts? For me, the key moment on this issue was on a hike in Yosemite in 2001.

Doris Lake (not Yosemite)

Doris Lake (not Yosemite)

My first husband and I were being guided by an older couple who had once lived in the Park– he was a very early climbing guide and she was the first female ranger to carry a gun in the Park. In other words, they were both fierce and strong. They led us into a hidden granite space that was sun-filled and had water running through it. A collection of very fit, young backpackers and others “in the know” were there swimming. The woman guiding us was a breast cancer survivor of maybe a few years. As we lay there on the rocks she said, “I just don’t think I want to take off my top and swim.” I said something like: “That’s totally understandable. And you don’t have to.”

It was clear to me that this was a political decision for her– she felt she should make a statement. She should be brave. She should announce the strength of her altered body to these young women. And it is likely they would have affirmed her– even told her she was brave. Or not. I was glad she decided to just relax.

During chemo, your bald head announces your condition. But what about afterward?

I am still focused on health. I will have three weeks or so off between chemotherapy and surgery. In that time, I will try to get especially some of my abdominal muscles back, to help with healing.

The last time I lost weight (the whole 25 lbs and more) was after my divorce. In my anger and helplessness I walked stairs at the beach every day, more and more sets. I didn’t just lose weight, I transformed my body. And I didn’t like that either. I didn’t recognize myself, and I thought I looked like a rather desperate divorcee trying to attract a man. I tried to enjoy the weight loss, but “sexy clothes” were really not for me. Men complimented me. That’s never been my identity. It didn’t feel authentic.

downward dog up yoga joeThis week my parents were here helping out, and my mother cleaned my bathroom. She carefully set up my Yoga Joe’s along the edge of the tub. She got them all right– the proud warrior, the brave warrior, the tree, the headstand– except one. I had to laugh when I saw him, the downward facing dog yoga Joe, sitting there reaching joyfully to the sky. He looked like a little kid. Stretching.

 

Posted in cancer | Tagged , , , , | 3 Comments

Dancing on the Ceiling

royal wedding-ceilingI’m sitting in my room in treatment and just finished watching Fred Astaire dance on the walls and ceiling of his hotel rom in Royal Wedding. It is not the first time I’ve seen this number. I’ve seen it dozens of times. But my smile– I have never felt such joy and exuberance over it before.

That’s because today is the day we reviewed the second PET scan with my oncologist. Halfway point, heading into Cycle 4 of 6 today. I had the scan done on Thursday, and what with the fasting and talking about blood, I kept up my reputation and passed out shortly after they accessed my port. We still did the scan and I was fine, but that was 4 days ago. I kept hoping for a good result, but I also went back and read the review of the first PET scan. Back when the doctor said, “There is more cancer than I expected,” and anyone could see how much that abdominal (peritoneal) area glowed and the bright spot on the lung and its lining, too. The word “riddled” came to mind, but I pushed it away. The chemo would just have to work.

And it has. Last night I lay in bed and wondered about prayer, too. So many people praying for me, in specific ways. In every way, really. Pouring energy into killing the cancer. And I contemplated my own prayer life and my ongoing feeling that God is with me, the Holy Spirit strong, with ease and not many words, God present. Healing presence.

And today the scan. We reviewed the first one, as horrible as it was at the time. In fact, it was only this week I read the official “report” on the first scan and it was even less optimistic than my doctor had been. I’m glad I didn’t read it before.

But Thursday’s scan didn’t even look like the same person. Gone was the bright spot in the lungs. Gone were ALL bright spots, though there are dull spots (smaller and less metabolic activity). All “tumors” are described as significantly smaller and all activity along the lining of the liver is completely gone. The dull yet good-sized tumors are where I want them, in the ovaries, which can go. There is still work to be done, but my goodness. It was extremely encouraging. Cancer is being killed.

Now the plan shifts slightly. We’ll do surgery after 6 rounds, as planned. And then it is possible we’ll do 2 more rounds of chemotherapy to make sure all cancer is gone. The CA 125 number, an important marker, has also been coming down steadily. It is exactly halved” from 164 to 82. It has to go below 35 to mark I’m cancer free.

Fred on Ceiling Royal eddingAnd when I turned on TCM and saw Fred Astaire, well, bonus! Now I have another memory of an emotional response to his work joy. Dancing on the ceiling.

Even with fatigue, I have been dancing in the kitchen when making or eating food. Music. Dancing. Even on bad days. Now with Fred.

 

Posted in cancer | Tagged , | 12 Comments

Inventory

greens got by rabbitPerhaps when one is choosing what to let go of and what to hold onto, one should not hold onto something that is dependent on the weather.

I’m scaling back my garden plans. Friday it got up to nearly 90 degrees, and nearly wiped out my greens in one fell swoop. I got Steve and Jeff to take the cold frame lid off that afternoon, and by 10:30 a.m. Saturday when I went out to harvest greens, a rabbit had eaten most of them.

I got out for about 20 minutes of watering Friday, but I can’t do that every day. It still means running a light hose and a couple trips up and down a (small) hill to turn the faucet on and off. Good days on good weeks, yes. But not any old time it decides to shoot up to 90.

Even in good years, I’m at the mercy of the weather with my garden. Today, looking at my little tomato and pepper seedlings on the windowsill, I had to ask myself: “What the heck am I thinking??”

So let’s do this: let’s cut the number of beds we’re going to plant in half. Two already have maturing garlic in them, one is taken care of with asparagus.

Let’s plant kale, and sprinkle the seeds for greens, lettuce and carrots, and see what happens there.

For the rest, let’s plant some green beans, zucchini, cucumbers, and winter squash. Sow some dry beans like Jack and let the bed go to weed or cover if it must– if there’s anything there late August, that will be nice. If not, legumes help the soil. This year we’ll have eggs.

tomato seedlingsLet’s give up beets. Give up the Brussels sprouts. Give up peas. Give up eggplant and parsnips and cabbage. Let’s give up most of the tomatoes and peppers. Focus on  a few hardy cherry plants and some sweet peppers. If the weather goes bad, I’ll let go of the tomatoes and peppers, too. If I’m in a place to can in September, I can buy a case of tomatoes that someone else grew.

Let’s set different goals for now: reading a book, say. Keeping rested. Taking walks. Keeping my skin cared for. Let’s nurture the body instead of the garden, just this year. Watch the weather do what the weather does. Go to the Farmer’s Market on Fridays when that works. Next year I’ll be back to the dirt. Next year I’ll grow the food.

IMG_0677Postscript: 

Steve set up a fence around the garden beds late this afternoon. I warned him that if he left the chickens and the transplanted broccoli without fencing it would all be eaten. He went to a store for two more fenceposts, and… they didn’t touch the cauliflower, but we’ll see if the broccoli comes back.

garden fence

Posted in cancer, garden | 2 Comments

Pot

Medical-Cannabis1When you have cancer, people will talk to you about marijuana. Pretty much right away. A lot of people (I suppose this depends on the circles in which you travel, but still, I’ve been surprised by who and how many).

There is the obvious topic of pot for nausea during chemotherapy. I was offered pot and edibles right away. There are also those who have talked to me about it as a cure.

If I’d had my diagnosis when I was in Las Vegas in January, I could have easily gotten a prescription and walked into a medical marijuana dispensary and bought some. Then would I have flown with it in my suitcase? Truth be told, I took a very small amount of pot with me to Vegas. I am an extremely occasional user, still working on a small amount someone gave me as a birthday present three years ago. But, you know, desert seemed like a good place to have a little pot. In the end I took a few puffs one night, which aggravated my “chest congestion,” so I packed it back up.

When I got home and opened my packed suitcase I saw that the TSA had searched it. The pot probably looked like more than it was, because I was so crafty I packed it with coffee in the bag (haha). They decided I wasn’t worth it, I suppose. I mean, it was Vegas.

After the diagnosis, I knew right away I didn’t want pot from the “street.” It’s important to me not to participate in the international drug trade (I realize the previous paragraph points out my inconsistency here, but I assumed now I was talking about a different quantity). The fact that I have access and no fear of prosecution at this point speaks not just to changing attitudes in the country about pot, but also to my privilege. What has surprised me the most has been the offers of pot over e-mail and Facebook. The cat is out of the bag, folks. The fear of disclosing illicit or illegal activity in this particular arena is seriously diminished.

I do have access (again, privilege) to medical marijuana channels. I ordered some edibles made with Washington State medical marijuana through a friend and got them through the mail. My thought was that I would use pot sparingly for chemo side effects. I told my oncology nurse during treatment and she put it on my medications list. I have not had nausea, but I used the edible early on as a sleep aid and appetite aid. In early weeks when I was up for hours in the middle of the night, it did help me sleep.

In Minnesota, medical marijuana legislation passed last year, on an extremely limited basis. It was mostly a compassionate measure for children with seizure disorders or a few types of chronic pain. A very few doctors can issue the prescriptions and the treatment, only in pill form, must be taken through a very few channels in the state under close supervision. Not surprisingly, the numbers of people taking up this option are extremely small. According to a radio show I heard in Vegas, which was about dispensaries setting up banking co-ops to try to handle the financial complications of selling a federally illegal substance legally in a state, the numbers are vey low in Nevada as well. I suspect this has to do with the easy access to illegal pot and its cheap price. Who wants a prescription for it on their record or to draw attention to use when there’s a guy on every street corner and, I assume, in every casino?

I think decriminalization of pot is a good thing. I think it clearly has medicinal uses. I also think we can decriminalize it in a way that provides people with relief, quality, and a way to diminish illegal trade and all the violence and danger associated with that. We can’t make people be responsible about it, but we can’t do that with alcohol either—except we’ve done as well as we can with drunk driving, and we need to do better in all areas with “impaired” and distracted driving—including cell phones.

My experience, here in week ten of treatment, has been decidedly mixed. A very small amount of the very strong edible basically wrecks me. It puts me to sleep, which is great, but after a couple hours I’m awake again. I don’t get any pleasurable high, rather kind of a dizzy in a “don’t operate heavy machinery” way, just of out of it. I hardly ever use it. I have to kind of remind myself about it as an option.

But also, and this makes me want to keep taking it, it makes the cancer hurt. In my chest and my abdomen—it makes the cancer really hurt. And that I’ve taken all along as a sign that something is killing the cancer. So if it’s helping the chemo along, or targeting the cancer directly, I don’t know, but it feels like part of the overall treatment. Here is a link to the NIH Cancer page that says cannabinoids have been shown to kill cancer cells in a laboratory.

So there’s my experience. I’ve found it valid for medicinal purposes. It is not about people hanging around in bed smoking big joints and all mellow as you may have seen in the movies or on television. Nobody in treatment for cancer is giggling their way through life by smoking pot.

Also, it is out there. It is everywhere and the distribution and usage and punishment over it is completely driven by privilege or lack thereof.

Posted in cancer | Tagged , | 3 Comments

This Year’s Garden

kate planting potatoesThis week marked a turning point for me in terms of fatigue. The real low point was marked by my inability to make a meal on Thursday. I haven’t been keeping up with the grocery shopping, and sending others out with a list is inadequate at best. So far I’ve always been able to prepare something simple and fresh. But Thursday, Sunday’s leftovers were gone and about all I could manage was getting dressed and driven to my Granix shot (for WBC count) and some online work in bed or on the couch. Through the fog of my nap I was being hard on myself– there is leftover rice, eggs, snap peas and frozen cooked shrimp down there– surely you can rally for some stir-fried rice!

But no, I could not rally. I was nearly in tears when Steve got home and I said we should get some take-out Chinese food. Knowing that the vegetables included in our local Chinese food means maybe some scallions and nothing more, I did throw those snap peas in a pan with hoisin and soy sauce before the food arrived. Sigh.

Of course, this is also my annual anxious time in the garden. After a very cold April, we’re almost upon “the last frost date” and by June 1 all can be put in the ground. The seed potatoes arrived two weeks ago and have been sprouting in the basement… And I must have potatoes. I must! Potatoes have been one of the few things I enjoy eating still, and come fall I’ll be cooking again in earnest (inshallah). I ordered too late this year for my favorite red variety, but I got purple instead, and my favorite fingerling, La Ratte. And a couple reds from the local hardware store.

Plan B: Ask for Help

la ratte in trenchMy friend Kate, who runs Common Ground CSA for the Sisters of the Order of Saint Benedict, had offered to come out and plant my potatoes, and I took her up on that offer! Yesterday, on a day that was colder and windier than we’d expected, she walked the mile to our house and dug the trench, mixed the compost/peat, and all I had to do was cut the tubers and place them in the rows, then stand with the hose and water them. We had a lovely time, it took just over an hour, and now there will be potatoes. I also tucked some peas in along a fence that was used to support overflowing tomato plants last year, and she stood up my bean fence for when that time comes.

 

yak backbone 2016The bonus was this year’s yak skeleton find. The compost is the last from a local yak farmer who has since gone back to growing Christmas trees. Here’s a draft of a poem from H is for Harry about that. Kate unearthed (great word, no?) a large piece of backbone, vertebrae intact. Am I holding it upside down? I s that a pelvic bone or clavicle?

Plan B: Easier Meals

I still have chicken soup in the freezer that people brought over, and I just have to be a little more pro-active about defrosting it. But also, I have to remember what it was like to cook before I committed so fully to the seasonal/garden eating.

spaghetti sauceFor example, they sell tomato sauce in jars! I used to be a big “Sockarooni” fan before I started canning tomatoes and freezing my own sauce. And the frozen entree aisle of the grocery store has also improved. I’m not ready to fork out the money for PF Chang’s entrees, but Birdseye makes some bags of stir-fry ready stuff and also creamy chicken pasta vegetables… And there’s frozen pizza, another thing that I’ve continued to enjoy eating somewhat (pepperoni, gotta be DiGiorno’s pepperoni).

So yesterday, although it was the end of the day and pushing it a bit, I did a big shop. And I went down some of the middle aisles, not just the produce and dairy aisle. And the freezer is stocked. And I’m doing just a little more letting go– for now.

But there will be potatoes.

And with the raised beds, there will be easy things to plant, too. We’re about a week away from the first harvest of greens from the cold frame, and I know there will be beets, and cucumbers, and zucchini, and squash, and kale, broccoli and cauliflower, lots of squash, and some carrots and onions. And downstairs the pepper and tomato seedlings are just emerging from the soil, germinating on their heated mats through the last week of cold weather.

yak bone collection 2014-2016

yak bone collection 2014-2016

Posted in cancer, garden | Tagged , , , , | 2 Comments

Fertility

May and white pine

A new painting came to live with me yesterday. As Sophia said, time to get the winter painting out and get something green in the room. She walked it across the commons in the morning and we set it up on the desk in my bedroom. We’ve had such a cold stretch of weather, so even though there is a lot of green, it was raw and cold– and Sophia was trying to get ahead of the sleet. Luckily, the white pine in my window is nice and green.

May across the commons

The commons looked quite different from when Annie and Sophia walked “February” over six weeks ago. That was a day when we still hoped for an early spring. The prairie surrounded them. Last week it was burned to make way for new growth this season. You never know when the wind will be right and the burn will happen.

prairie burn april 16

The whole thing is rich with meaning. Burning to make way for new growth. My skin and sinuses have been burning lately. The chemotherapy is burning the cancer out as well. Occasional hot flashes. Controlled burn indeed.

These paintings have such a strong effect on me– Sophia was barely out of the house, and despite it being a tough day of recovery, I could almost hear my creative synapses firing. And so, a poem…

May by Sophia official full

“May” by Sophia Heymans: http://sophiaheymans.com
acrylic, string, cut up socks, tree seeds, oil on canvas. 48″ x 60″. 2014

Fertility

after “May,” a painting by Sophia Heymans

From the shape of the patch I say
it is a wetland, round and marshy
and verdant at the edges,
floppy stands of sedge
firework trails of last year’s growth
scored into the canvas.

From the trees I say it aspires
to be an oak savannah,
rooted and long-standing,
wise and showing off its age,
upper branches a roost for hawks
though not quite yet.

The border tells a different story:
rows upon cultivated rows,
brown and clean and waiting
for the dark sky to drop its rain,
and reaching in, bottom right,
a row of bright green new leaves.

But it is the laundry that tells me
about the freshness of the sky
and the warmth of the sun,
and it is the curve of her belly
that tells me about this ripe season
and all the life that is to come.

 

May by Sophia detail woman

Posted in art, cancer, poetry, the Farm | Tagged , , , , | 1 Comment

First Harvest

chickens on stoop outside

These girls have figured out where I live. Last year they never got this close to the house, but I made the mistake of going out and feeding them sunflower seeds. And they figured out where I take the bag afterward.

A few weeks ago I was on the couch in the living room and heard a knock on teh door. Or no, it was a peck. All five had their faces at the door. It cracked me up.

chickens outside front door

The problem is what they leave behind. In rain, the poop on the stoop is particularly annoying. And they also have figured out that it’s not raining under the overhang on the porch. The good news is that they make me laugh every day, running around and showing up in unexpected places. Also, the eggs. The eggs are insane. They’re getting plenty of protein and sunflower seeds, and laying 4-5 eggs a day with deep orange-yellow yolks.

first asparagus 16

But the real first harvest was today. Four days ago I saw the first sign… I’m so glad I planted asparagus five years ago. You can’t harvest until the third year, but then it just comes up– and comes up early!

 

 

Tonight for dinner– asparagus! And I can’t say it tasted good, but there was a hint of flavor and it didn’t taste bad, always a plus. Fresh, fresh, fresh, you can taste that no matter how compromised the taste buds.

Two weeks away from baby greens, spring onions and radishes, if the weather holds. And late, but not too late for a June 1 transplanting, I got the peppers and the tomatoes in trays. It’s going to be a shishito summer.

 

Posted in garden, the Farm | Tagged , , , | 1 Comment

The Numbers Game

2082431_Numbers-700x450-620x300The most terrifying part of the ovarian cancer diagnosis for me has been the numbers. There are many numbers.

It begins with staging. I knew what stage 4 meant as a number, though not why, and when Steve asked, it was spelled out for us. Stage 4 means it has spread to a second site, in my case from the peritoneal lining to the lining of the right lung. And when it has left the initial site, it is no longer curable. It is treatable. And there are many treatments.

And so the next number you get is life expectancy. I didn’t want that number and had avoided the internet for three days to avoid it. But now, Steve asked and the doctor told us. And it was in years, not months. It was a foothold. And it was just the average.

I looked at Steve and said, “No, for us it’s 5-10 years.” It seemed wrong, hubris, to counter the doctor’s number with the number 10 right there in his office, but from the beginning that was my number. I just added that lower threshold to ease into it.

“I have a patient right now, stage 4 ovarian cancer,” the doctor said, “who has been cancer free for 10 years. But she is an outlier.”

By the time we got home I had internalized a different number than what the doctor said. A better foothold, more cancer-free time than the average. When Steve reminds me that was not the number, I say: “Let’s just let that be the number.” Even in the diagnosis meeting the nurse tells me, as she shows me what the port looks like: “You have so much going for you. Your age. Your overall health. Your support system.” To which I add to the list:  “Your lifestyle. Your faith.”

We can count those on our fingers: five things that make me not average. The average number does not apply to me.

A week later I get my CA 125 number. The doctor has told me that it will be over 30 because it is ovarian cancer. And he has said it might be in the hundreds, or even in the thousands.  He says not to worry about the number because it will go down with treatment and it doesn’t mean anything if it is higher or lower. And yet, when it is “only” in the 200s, we are all happy and celebrate.

I look online for another number. That number is awful, too. Survival rate for 5 years: 47%. The cruelty of it being 3% below 50/50 is not lost on me. But I can work this number, too. I can use my five factors and other numbers to push myself above the average.

I am under 65, so that gives me a better percentage.

I have health. I have already gotten the healthy eating down. Just look at my Chem 10 panel each week, brimming with numbers in the normal range.

I am in good shape.

I am loved.

I push myself into a smaller and smaller part of the wedge. I am way up there, with a great chance of getting to 10 years before another treatment. Many cancer free years. I, too, am an outlier.

When I talk to other survivors, I want to know– “how many years since diagnosis”? Over and over again the number is 5, 7, 10, 12, many of them older than me, and all of them going…

Every week I get more numbers. The white blood cell count drops and drops– seemingly the only treatment-based number fully out of my control. But I get a round of five shots, and the number shoots up into the double digits. I am back at the top of the range in time for my trip to Chicago. When glucose goes up, or potassium down, I adjust my diet. Minerals! Apricots! Fish!

When Round 3 starts off rough, I count down the days until I know I’ll feel better– 3…2…1.

After Round 3 we’ll check the CA 125 again.

And then I find this in the book A Guide to Survivorship for Women Who Have Ovarian Cancer, which I am reading very, very slowly, navigating the information and charts full of numbers. “For some women, namely those with early-stage disease and about 30 percent of women with advanced-stage disease, ovarian cancer is treated once and for all with an aggressive combination of surgery and chemotherapy. The disease is diagnosed, is treated, goes away and never comes back.”

 

Posted in cancer, writing | 2 Comments

Somali Scarf Shopping

IMG_0617I came back from my trip to warm temps, greener grass, and full-throated frogs in the wetlands. And that means I need to move from my winter hats and think about lighter headwear for summer. I tell you, I am enjoying this bald-headed challenge and loving the hats and scarves!

I had thought of this a few times seeing East African women in St. Cloud, but in the airport one woman with a scarf was so inspiring I almost asked if I could take her photo. And last night there was a wonderful Frontline on Syrian children and the teenager was rocking all variety of headscarves. The girl could tie a scarf!

Sistah'sSo today, as part of my errands, I went to a local Somali shopping area. This place has really grown, and every spot is occupied by Somali businesses. There is also a place for prayers, and the parking lot was full and men were coming out of that space. There is a pharmacy where the old Asian grocery used to be, two restaurants, a grocery or two, and other multi-use spaces like “Sistah’s Beauty Supply” which I misread twice as “Susan’s Beauty and Supply.” How’s that for chemo brain? That space has a myriad of household items, clothing, fabrics, a sewing machine for customization, and in the back a money transfer office.

In the shop I was greeted by a very kind, gentle, beautiful man. He wanted to talk. He showed me the scarves and particularly preferred a blue one with lots of silver. I said, “That’s too much silver for me,” and he smiled broadly. “Yes,” he said. “Maybe for a very special occasion,” I said. “Some people like it.” I picked this one and he showed me the mirror where I could try it on.

IMG_0616

Then Asha came in and was standing nearby. I smiled at her and she showed me a dress she liked for her daughter, but it was too small. I asked if she could help me tie the scarf, and she did. I didn’t want to take off the turban I had on already, which confused her a bit. First she tied it long in back, simply.

Her English was very good, but when I complimented her on it, she said, “Oh, no, it’s broken.” We talked about her children, at school at Stride Academy, a “tough” school with lots of work.

I tied a little side rosette. I said I wanted something “fancy.” She asked if she could help retie it, and I said of course. She is the professional; that is why I came.

“I am a professional at the hijab,” she said. She readily agreed to a photo. Isn’t her version better?

IMG_0615

I asked her name and she asked mine. She knows another Susan: “She works with us at Talahi, the school,” she said.

While she was retying the scarf, she asked something like: “Why do you want to wear this scarf?”

“I have cancer,” I told her, and her expression fell.

“I’m sorry,” she said.

“It’s OK, I’m doing well.”

“Prayers,” she said, “for you.” Also, “I am glad you are doing well. You will live, right?”

“Yes, I will live.” We came very close to hugging– I would say we did hug, though not in the American way.

I bought two scarves. I went back to ask if I should pay her, but she had her prayer mat out and was praying.

So I went back and found the kind gentleman. His face lit up. “That is so beautiful, so beautiful,” he said. $12 for two scarves.

At the grocery I bought a bag of rice and asked about the meat. They had camel, but I went for goat instead. There is time for one more good stew this year.

Then I went to Byerly’s, an upscale grocery in St. Cloud. They have good meat, too, and organic sour cream. A man was there in front selling newspaper subscriptions. “I love your scarf,” he said. “It looks great!”

Posted in cancer, St. Joseph | Tagged , , , , , | 5 Comments